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A Perfect Extra Chromosome

A Perfect Extra Chromosome

Heroes come in many different forms and each one brings with them a particular beauty to the world.....a gift that they are to share. Krista's story about her daughter born with Down Syndrome stars many heroes - a mom for seeing her daughters gift and letting her shine it brightly while also advocating for other families to do the same, and a little girl whose wild enthusiasm and captivating smile remind us that we are all one and that love and kindness are universal. To these brave and beautiful heroes, thank you for shining so bright and for sharing your story.....

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On December 20th, 2012 we found out that we were expecting our second miracle. We were a bit surprised but felt like the news was a very happy blessing. We just knew that it would all go well, being 36, I was still fairly young, and our first pregnancy resulted in giving birth to our beautiful, little girl, Brinley.

We booked our first ultrasound just to make sure that all was going smoothly, little did we know that the rug would be swept out from under our feet.

One week later, we received a call from a nurse saying that my placenta may not be providing baby with enough nutrients and may not be able to sustain life and also that we had a 1:2 chance that our baby would be born with Down syndrome.

After a pregnancy filled with a million emotions, on Tuesday, July 23, 2013, we welcomed Adele into the world.

Although Adele is now four years old, there are still struggles.

Adele is a healthy little girl, but we still have lots of appointments, therapy and she just started preschool. It is a different journey, filled with worry and sometimes heartache. I let my mind wander, and I think about twenty years down the road instead of focusing on the beauty of today. I worry about what the future holds, but on the other hand, we have the most amazing community, filled with love, respect, hope, and joy. I have an incredible network of friends, and when times get tough, I reach out to those who understand the journey of Down syndrome.

Adele is pure light. She brings joy to those around her, and she is loved by friends all across the globe. Although some days are difficult, I look into Adele's eyes, and I see a beautiful miracle, a blessing. She has impacted so many lives and continues to overcome stereotypes and beat down barriers that are often associated with Down syndrome.




To other families who are going through the same thing, I would like to tell them that it'll be ok. It is very simple, but these words carry a lot of weight. I am thankful for what Down syndrome has done for our lives. We are allowed to feel defeated and show weakness because we are human, we are moms and dads. We are good enough for this role. We will stumble many times, but we will always get back up on our feet and will be grateful for the blessings that surround us. One day at a time.

My favorite quote is: “Courage does not always roar. Sometimes courage is the quiet voice at the end of the day saying, “I will try again tomorrow.” — Mary Anne Radmacher

By: Krista Rowland-Collins
 



You can follow Adele's Journey at:
Blog - http://aperfectextrachromosome.blogspot.ca/
Instagram - @aperfectextrachromosome
Facebook - https://www.facebook.com/aperfectextrachromosome/
Coming soon..... https://adelesovertherainbowbaskets.org/

 

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